The Hungarian Twin Registry - Magyar Ikerregiszter                                                                                                              ENGLISH  MAGYAR
                                                                                                               

ISTS 2019 workshop


ISTS Twin Registries’ Networking Meeting in Budapest

15-16 April 2019
Semmelweis University, Budapest

The  ISTS Twin Registries’ Networking Meeting, which will be held between 15 and 16 April, 2019, at Semmelweis University, Budapest, Hungary.
The scope of the meeting will include building new international collaborations in twin research and provide networking possibilities among researchers. The meeting welcomes representatives of both new and established twin registries and will offer a unique opportunity for researchers to share challenges, tips and tricks on maintaining their invaluable twin registries. For example, novel epigenetic twin studies, which require larger sample sizes, especially when studying twins suffering from rare diseases and collaboration across countries is therefore of great importance.
The meeting will consist of networking workshops on various topics, in which researchers can provide their already available twin data and/or being interested in future data collection for international collaboration.
The aim of the meeting is to provide a foundation for collaborations with the intention to further develop these collaborations during meetings at the ISTS 2019 congress in HongKong (29 to 30 November, 2019).

Location: Basic Medical Science Center (EOK), Semmelweis University, 37-43 Tűzoltó street, Budapest 1094, Hungary. Ground floor, left side, Seminarium rooms 1, 2 and 4.

The conference center is 5 minutes by walking from the „KLINIKÁK” metro stop (Metro line 3).

Please register by December 31, 2018 on the following link:
http://www.123formbuilder.com/form-4500803/online-event-registration-form


Registration fee is 120 EUR per person, which includes:
-    lunch for both days
-    dinner on Monday night (on the Danube, boat) and corresponding public transportation ticket
-    snacks and drinks during coffee breaks
-       location, cleaning, technical support

Registration fee must be transferred to the following account until 15 March, 2019:
Name of Bank: UNICREDIT BANK, SWIFT: BACXHUHB
Account No.: 109180010000008140060010
IBAN: HU03 1091 8001 0000 0081 4006 0010
Name of account holder: MAGYAR IKERREGISZTER ALAPÍTVÁNY



Announcement / felhívás (pdf)

Preliminary program / előzetes program (pdf)


PRELIMINARY PROGRAM

Monday, 15 April, 2019

08.00 Registration opens

08.30 Opening of the workshop by local organisers (Adam D. Tarnoki, David L. Tarnoki) (Seminarium room 1 and 2-2)
Video message from ISTS president (Jeff Craig)

09.00 Session 1: INTRODUCTION: Welcome address (Seminarium room 1 and 2)
Moderator: Adam D. Tarnoki, David L. Tarnoki
Introduction of participating twin registries (3 minutes each)

1. California Twin Program, Internal Twin Registry, USA (Wendy Cozen)
2. Center For Twin Research, Osaka University Graduate School of Medicine, Japan (Rie Tomizawa, Norio Sakai, Chika Honda)
3. Danish Twin Registry, University of Southern Denmark, Denmark (Qihua Tan, Jonas Mengel-From)
4. EFPTS, Maastrich, The Netherlands (Marij Gielen)
5. Netherlands Twin Register (Gonneke Willemsen)
6. Twin Life, LUMC, Leiden, The Netherlands (Jeanine van Klink, Enrico Lopriore)
7. Hungarian Twin Registry (Adam D. Tarnoki, David L. Tarnoki)
8. Ibarapa Twin Registry, University of Ibadan, Ibadan, Nigeria (Oluwatosin Leshi)
9. Iranian Twin Birth Registry, Cancer Institute, Tehran, I.R Iran (Kazem Zendehdel)
10. Isfahan Twins registry, Iran (Mojgan Gharipour)
11. SEDA Iranian twin registry (Roza Bahari Shargh)
12. Washington Twin Registry, Iran Twin Registry (Shayesteh Jahanfar, Glen Duncan)
13. The Healthy Twin Study, Seoul National University, Korea (Joohon Sung, Soo Ji Lee)
14. Italian Twin Register (Maria A. Stazi)
15. TwinsUK (Claire Steves, Deborah Hart)
16. Western Australian Twin Register (Nicholas de Klerk)

10.30 COFFEE BREAK

11.00 Session 2: UPDATE OF ONGOING INTERNATIONAL COLLABORATIONS, EXCHANGE PROGRAM BETWEEN TWIN REGISTRIES (Seminarium room 1 and 2) (Moderator: Gonneke Willemsen) (5 mins each)

Wendy Cozen, Chika Honda, Gonneke Willemsen, David L. Tarnoki, Shayesteh Jahanfar, Joohon Sung, Maria A. Stazi, Claire Steves, Veronica Odintsova

11.55 GROUP PHOTOGRAPH (Seminarium room 1 and 2)

12:00 LUNCH BREAK
Location: Veranda Grill & Wine Restaurant (9 Vendel Street, Budapest, 1096) (see the map below)
13:00 Session 3: UPDATE ON TWIN STUDIES IN EPIGENETICS AND MICROBIOME (Seminarium room 1 and 2)
Moderator: Shayesteh Jahanfar

13:05-13:20 Role of epigenetic twin studies. Importance of international collaborations in epigenetic studies (Joohon Sung)
13:20-13.35 Epigenomics studies in newborn MC twins (Bas Heijmans)
13:35-13:50 Role of microbiome twin studies. Importance of international collaborations in microbiome studies (Chika Honda)
13:50-13:55 Discussion

14:00 Session 4: Networking Workshops I.
-    Genetics and Epigenetics (Seminarium room 1 and 2) (Claire Steves, Joohon Sung)
-    Mental health (Seminarium room 4) (Antonia Stazi)

15:00 Session 5: Networking Workshops II.
-    Microbiome (Seminarium room 1 and 2) (Nicholas de Klerk, Chika Honda)
-    Twin statistics (Seminarium room 4) (Shayesteh Jahanfar)

16:00 Summary of Networking Workshops I. and II. (Seminarium room 1 and 2)
-    Genetics and Epigenetics (Claire Steves, Joohon Sung)
-    Mental health (Antonia Stazi)
-    Microbiome (Nicholas de Klerk, Chika Honda)
-    Twin statistics (Shayesteh Jahanfar)

16:30 COFFEE BREAK: INTERNATIONAL FRIENDSHIP FOOD/DRINK TASTING – let the others taste the speciality of your country (please bring the food and/or drink speciality of your country!)

17:00 Session 6: Networking Workshops III.
-    Metabolic, endocrinology (Seminarium room 1 and 2) (Glen Duncan, Dora Melicher)
-    Neurology (Seminarium room 4) (Jeanine van Klink, Enrico Lopriore)

17:45 Summary of Networking Workshops III. (Seminarium room 1 and 2)
-    Metabolic, endocrinology (Glen Duncan, Dora Melicher)
-    Neurology (Jeanine van Klink, Enrico Lopriore)

18:00 Facultative hands-on workshops (Departure from Seminarium room 1 at 6pm):
-    Imaging twin studies: how to perform the measurements? Visit in the Department of Radiology, Semmelweis University (for those who are interested in future collaboration in imaging twin studies) (Adam Tarnoki)
-    Microbiome twin studies: how to perform the measurements? Visit in the Department of Microbiology, Semmelweis University (for those who are interested in future collaboration in microbiome twin studies) (Dora Melicher)

19:00 DAY 1 ends

19:30 Departure from conference venue to the reception
(Metro line 3 – round-trip public transportation ticket will be provided for foreign participants)

20:00-23:00 RECEPTION on Danube (Colombus boat)
Location: Columbus Ship, Santa Maria Hall and Danube Terrace
(Budapest, kikötő, Vigadó tér 4, 1051)

Tuesday, 16 April, 2019

8:00 Session 7. EMERGING AND ESTABLISHED TWIN REGISTRIES (Seminarium room 1 and 2)
8:05-8:25 Application-Based Twin Registry Construction (Joohon Sung)
8:25-8:50 Collaboration for grants and data merging from multiple registries (Glen Duncan)
8:50-9:10 Using geodemographical information to enrich datasets and study the gene x environment interaction (Gonneke Willemsen)
9:10-9:30 Discussion

9:30 Session 8: Networking Workshops IV.
-    Cardiovascular (Seminarium room 1 and 2) (Gonneke Willemsen, Adam Tarnoki)
-    Antropometric (Seminarium room 4) (Jonas Mengel-From, Deborah Hart)

10:30 Summary of Networking Workshops IV. (Seminarium room 1 and 2)
-    Cardiovascular (Gonneke Willemsen, Adam Tarnoki)
-    Antropometric (Jonas Mengel-From, Deborah Hart)

11:00 COFFEE BREAK

11:30 Session 9: Networking Workshops V.
-    Imaging, Respiratory (Seminarium room 1 and 2) (Claire Steves, David Tarnoki)
-    Biology of twinning (Seminarium room 4) (Jonas Mengel-From, Chika Honda)

12:30 Session 10: Networking Workshops VI.
-    Chronic pain (Seminarium room 1 and 2) (Maria Antonietta Stazi)
-    Cancer (Seminarium room 4) (Kazem Zendehdel)

13:30 LUNCH BREAK
Location: Veranda Grill & Wine Restaurant (9 Vendel Street, Budapest, 1096) (see the map below)

14:30 Summary of Networking Workshops V. and VI. (Seminarium room 1 and 2)
-    Imaging, Respiratory (Claire Steves, David Tarnoki)
-    Biology of twinning. Complicated MC twins (TTTS, TAPS, sIUGR, monoamniotic) (Enrico Lopriore, Chika Honda)
-    Chronic pain (Maria Antonietta Stazi)
-    Cancer (Kazem Zendehdel)


15:00 Session 11: Networking Workshops VII.
-    Biomarkers / OMICS (Seminarium room 1) (Jonas Mengel-From)
-    Immunology and infection, Infectious diseases (Seminarium room 2) (Wendy Cozen)
-    Menarche and female health related diseases (Seminarium room 4) (Soo Ji Lee)

16:00 COFFEE BREAK

16:30 Session 12: Networking Workshops VIII.: Exploring regional funding/exchange opportunities
-    Europe and America (Seminarium room 1 and 2) (Gonneke Willemsen)
-    Asia, Australia and Africa (Seminarium room 4) (Norio Sakai)

17:15 Summary of Networking Workshops VII. and VIII. (Seminarium room 1 and 2)
-    Biomarkers / OMICS (Jonas Mengel-From)
-    Immunology and infection, Infectious diseases (Wendy Cozen)
-    Menarche and female health related diseases (Soo Ji Lee)
-    Europe and America (Gonneke Willemsen)
-    Asia, Australia and Africa (Norio Sakai)

17.45 Session 13. ORGANIZER'S SESSION: TWIN RESEARCH IN HUNGARY (Seminarium room 1 and 2)

18:15 Session 14. EVALUATION  (Seminarium room 1 and 2)
18:30 Wrap up




Registration fee includes:
-    lunch for both days
-    dinner on Monday night (on the Danube, boat)
-    technical support of the conference venue
-    cleaning service of the conference venue



We look forward to your participation.

Sincerely, 

Steering committee: Prof. Dr. Jeff Craig, Dr. Lucas Ferreira

Local organisers: Adam and David Tarnoki, MD, PhD


Announcement / felhívás (pdf)

Preliminary program / előzetes program (pdf)